Online Resources – SHaRe

Resources

Online
Cardiomyopathy
Resources

Patient Advocacy

HCMCare app available on iTunes or GooglePlayChildren’s Cardiomyopathy Foundation (CCF) (US)CCF Webinars; topics include genetics of CM, disability benefits, cardiac imaging and more!The Heart Dream Foundation (NL)Cardiomyopathy UK (UK)Hypertrophic Cardiomyopathy Association (US)Sudden Arrhythmia Death Syndromes (International)Dilated Cardiomyopathy Research Project (US)Nick of Time Foundation (US)Parent Heart Watch (US)Mended Hearts (US)Sudden Cardiac Arrest Foundation (US)HCMBeat.com Blog (US)

Cardiology Organizations

American Heart Association (US)The Association for European Paediatric and Congenital Cardiology (FR)British Heart Foundation (UK)European Society of Cardiology (FR)National Heart, Lung, and Blood Institute (US)

Registries

The Pediatric Cardiomyopathy Registry (US)Australian Genetic Heart Disease Registry (AU)

Cardiomyopathy Research Organizations

American College of Cardiology (US)International Academy of Cardiology (US)International Society for Heart Research (US)Qatar Cardiovascular Research Center (QA)ClinicalTrials.gov

Informational Sources

CardioSource (US)National Institutes of Health Genetics Home Reference (US)UpToDate: Hypertrophic Cardiomyopathy (Beyond the Basics) (US)UpToDate: Dilated Cardiomyopathy (Beyond the Basics) (US)Patient.co.uk (UK)

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Aaron Murphy
Edelman
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