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Welcome to SHaRe, the Sarcomeric Human Cardiomyopathy Registry

A Research Community

What started as a Database has grown into a Community

The goal of SHaRe, a first-of-its-kind effort, is to advance the understanding of Hypertrophic Cardiomyopathy (HCM), Dilated Cardiomyopathy (DCM), and Arrhythmogenic Cardiomyopathy, three types of heritable heart disease affecting nearly 2.4 million adults and children in the U.S. and Europe.

SHaRe is a multi-center, international repository of clinical data on individuals and families with genetic heart disease developed as a collaboration with several world-leading cardiovascular centers.

By building the world’s most robust database of its kind, cardiovascular geneticists and research-based cardiologists will be able to expand their knowledge base and generate fresh insights and research initiatives supporting the development of more targeted and effective approaches in the treatment of genetic heart disease.

Supported through research grants by multinational partners (MyoKardia, Inc.,(originally), Bristol Myers Squibb, Pfizer, Cytokinetics, BioMarin, and Tenaya Therapeutics, SHaRe brings together an expert group of experienced and knowledgeable cardiologists and geneticists from the United States, Europe, Australia, and South America with a passion for helping people with genetic heart disease.

Through our website, SHaRe seeks to highlight scientific findings from the registry and advances in the diagnosis, treatment and management of HCM, DCM and Arrhythmogenic Cardiomyopathy.

Centralized Database

Global Reach

Browsable Registry

For Clinicians and Researchers

Keep up with the latest research.

All that is happening

For Patients and Families

We know it can be a challenge to traverse the world of inherited cardiomyopathy.

Get the facts here

What are HCM and DCM?

HCM is the number one inherited cardiovascular disease. The condition is characterized by an abnormal thickening of the heart muscle, specially the left ventricle (the main pumping chamber).

DCM is an inherited cardiovascular disease which predominantly affects the muscle cells of the left ventricle of the heart. The left venticle becomes dilated or enlarged, and contracts less vigorously.

Investigators and Clinicians

Meet the Team

Click to learn more about the experts behind SHaRe.

Meet the Team

17000

Number of people currently represented in the International SHaRe Registry

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