Newsletter Archive

SHaReThe NewsArchive

Find below a list of our past Newsletters to browse

  • Fall 2018: Updates on Patient conferences. New research made possible by the SHaRe Cardiomyopathy Registry and new additions to the HCM Care App.
  • Winter 2017: Great tips on staying healthy for the holidays, a blog by the CDC on the importance of getting a flu shot and the story of Bouba', an amazing DCM patient.
  • Summer 2017: An inside look at SHaRe's HCM data and a link to a great documentary on one families journey to discover the gene behind their DCM.
  • New Year 2017: Understanding cardiomyopathy research and what it means for you.
  • End of Summer Update 2016: First SHaRe Study Published by the National Academy of Sciences!
  • Spring 2016: Slides and Video from our Stanford Conference and great news from MyoKardia for patients with Obstructive HCM.
  • Autumn 2015: Conference Video and Slides Online! New PI added to SHaRe. Help for Holiday Health.
  • Spring 2015: Two more SHaRe conferences are in the works and coming your way.
  • Summer 2015: Mark your Calendars!!! We're working with the Children's Cardiomyopathy Foundation and the Hypertrophic Cardiomyopathy Association to bring conferences to Ann Arbor, Chicago, LA and San Francisco!!
  • Happy 2015!: Clinical Trials, Conferences and Outreach. Get ready for an awesome 2015!
  • SHaRe Newsletter Second Edition: New HCM Clinical Trial, Cardiomyopathy Conference Recap, and Sammi's Story, November 2014
  • SHaRe Newsletter First Edition: Register for our upcoming Cardiomyopathy Conference in Boston, Read Wendy's inspirational story, and get more useful information! September 2014


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