The Sarcomeric Human Cardiomyopathy Registry (ShaRe) has been set up to advance our understanding of Hypertrophic Cardiomyopathy (HCM) and Dilated Cardiomyopathy (DCM). These heritable heart diseases are caused by mutations in the protein genes of the sarcomere, the fundamental contractile unit of heart muscle. They are genetically passed on in families in an autosomal dominant pattern of inheritance. The prevalence of these diseases, taken together, is usually estimated at 1 in 500 individuals in the general population.

A Cardiomyopathy Registry

By contributing de-identified clinical and laboratory data from the patients and families under their care, these investigators are making this registry one of the largest and most detailed data sets of its kind in this disease area.

Funded by research grants from MyoKardia, Inc., SHaRe brings together a group of experienced, knowledgeable cardiologists and geneticists from the United States and Europe with a passion for helping people with genetic heart disease.

MyoKardia’s mission is to revolutionize the treatment of genetic cardiomyopathies and related heart diseases through  advances in sarcomere-related biochemistry and molecular biology.

To download our brochure, click here.

Stay Connected: Join our mailing list for updates on research, treatments, clinical trials and events.


Meet the Team

Click to learn more about the experts behind SHaRe.

Share Your Story

Browse personal stories from patients & family members of those with HCM and DCM, and even share your own story!

Join Research Studies

Find out if you qualify for the newest cardiomyopathy clinical trials.


Research Centers

Click to discover the Research Centers who make SHaRe possible.

Stay Connected

Join our mailing list for updates on research, treatments, clinical trials and events.

Preparing for Your Visit

Take control: Get the scoop on how to prepare for your next cardiology visit here


HCM & DCM Facts

We know it can be a challenge to traverse the world of inherited cardiomyopathy. Get the facts here:

Latest Events, News & Announcements

Keep up with the newest HCM & DCM headlines and events.

Listen to podcast discussing the benefits of a cardiomyopathy registry.

Join us on Facebook

We want to hear from you! Join the conversation on SHaRe's Official Facebook Page.


International SHaRe Locations Around the World

Hover over and/or click a site for more information.

Number of people (patients & their family members) currently represented in the International SHaRe Registry:

7,429


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