Agenda
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Upcoming Events
Past Events
2019
Affairs of the Heart: Living with Hypertrophic Cardiomyopathy
November, 2019 New Haven, CT. More details and registration to follow.
2019
Living with Cardiomyopathy: A Family Conference
October 2019, Philadelphia More details to follow
2019
Affairs of the Heart: Living with Hypertrophic Cardiomyopathy
June 15, Durham, NC. Registration to begin in April 2019.
2018
11th Annual International SADS Foundation Conference
October 26-28, 2018, Ann Arbor, MI
Latest News
Click the links
Children with heart failure from dilated cardiomyopathy are seeing a dramatic improvement in outcomes in recent years
Science Daily
February 5, 2018
Hypertrophic cardiomyopathy: Who has an inherited risk?
Harvard Health Publications
August 2016
Sudden Death in Hypertrophic Cardiomyopathy Rarely Associated with Exercise
ESC
August 28, 2016
MyoKardia Publishes Article in Science Demonstrating That MYK-461 Prevents and Reverses Disease in Genetic Mouse Models of Hypertrophic Cardiomyopathy
NASDAQ Global New Wire
February 4. 2016
Why Should Cardiologists Consider Genetic Testing for HCM
JACC: Heart Failure
18 September 2014
Molecular Cause of Heart Condition Identified by Researchers
Stanford Medicine News Center
June 18, 2015
SHaRe: advancing the goal of effective treatment for cardiomyopathy
European Heart Journal
CardioPulse, Volume 36, Issue 19
Sanofi and MyoKardia Announce Groundbreaking Collaboration to Develop Targeted Therapies for Patients with Genetic Heart Disease
SHaRe
September 17, 2014
Stanford patient on having her genome sequenced: "This is the right thing to do for our family."
Cardiovascular Medicine, Stanford News
September 17, 2014
New pill-sized pacemaker implanted in heart of UK patient
The Guardian (UK)
June 9, 2014
MyoKardia Announces Launch of SHaRe Patient Registry for Genetic Heart Disease in Collaboration with World-Leading Cardiovascular Patient Care Centers
Business Wire
May 14, 2014
Announcements
The SHaRe Cardiomyopathy Registry is pleased to welcome our two newest Principle Investigators
Dr. John Lynn Jeffries and Dr. James Ware. Dr. Jeffries is Director of the Advanced Heart Failure and Cardiomyopathy Services at Cincinnati Children's Hospital Medical Center. Dr. Ware is Clinical Senior Lecturer in Genomic Medicine at Imperial College London and Consultant Cardiologist at Royal Bromptom and Harefield Hospitals. For additional information on Dr. Jeffries and Dr. Ware and our other Principle Investigators click here.
Yotube and Twitter
SHaRe is now on YouTube! Subscribe here for videos on cardiomyopathy treatment and research.
Follow us on Twitter: @SHaRe_Registry | Like us on Facebook: https://www.facebook.com/TheShareRegistry
Listen to podcast on Patient Empowered Radio, where patient Wendy Borsari discusses SHaRe and the need for a Cardiomyopathy Registry: Click here to listen!
News
Check back here for more upcoming announcements on SHaRe, HCM and DCM.
Headquarter
Contact
Aaron Murphy
Edelman
Aaron.murphy@edelman.com
1 (415) 229-3331